When I was pregnant someone told me they would call social services, and that my baby would be taken away—because of my Ehlers-Danlos Syndrome (EDS).
At that moment, my heart sank. It wasn’t that I doubted my ability to care for my child, it was the fear of being judged, misunderstood, or dismissed. I chose to stay with family who could help until I knew I didn’t need extra support, all while managing frequent joint dislocations, and attending specialised physiotherapy at the hospital.
My son was born with EDS and multiple other health conditions, requiring several surgeries. Over the past nine years, we’ve been through so much together.
None of this has anything to do with my EDS, it’s my determination, perseverance, and love that have mattered the most. Being a mum with EDS, raising a child with EDS, has given me insight, patience, and strength I never imagined I had. My own experience with EDS helps me support my son in the best way possible. Along the way, I’ve also learnt to prioritise my own health and manage my condition effectively.
If I could go back nine years, I would have called social services myself, confident in the support they could provide, instead of worrying.
Parents with disabilities shouldn’t fear social services—they are there to help, not to judge or discriminate. Disability discrimination exists, but support systems are in place to protect both children and families, and asking for help can make all the difference.
Every obstacle we’ve faced has strengthened our bond and shown me that courage, determination, and love always outweigh fear or uncertainty.
To other parents facing chronic conditions or pregnancy challenges: you are not alone. Asking for help doesn’t make you weak—it makes you resourceful. Your challenges do not define your ability to care for your child, they highlight your resilience and commitment.
If there’s one thing I hope my story conveys, it’s this, strength isn’t about being perfect or fearless. It’s about facing life’s challenges with love, persistence, and hope. Remember, reaching out for support is not a sign of weakness, it’s a step towards creating a safe, happy, and healthy life for both you and your child.
Looking back nine years to my younger self, I feel deep compassion. I wanted to share my story so no one else has to feel this worry during pregnancy. I hope that other mums feel encouraged to reach out for support when they need it.