Recently, I was told that my son should avoid certain things. It came from a place of care.
But it landed with a thud. A quiet, familiar ache that settled in my chest and didn’t leave.
Because my son is still so young.
He wants to explore, to laugh, to take part in the world around him, just like any other child. And I want that for him.
But like many parents of children with additional needs, I often find myself in the middle of a constant tug of war.
⚖️ A Daily Battle Between Opposites
The rope pulls in different directions every day:
• Safety vs. fun
• Expert advice vs. parental instinct
• Planning everything vs. just being present
• Inclusion vs. isolation
• Advocating vs. burning out
Sometimes I feel like a safety officer, measuring risk at every corner. Other times, I feel like I’m holding my breath, hoping I’ve made the right call, hoping I haven’t taken too much joy away in the name of protection.
It’s exhausting.
It’s emotional.
And most of all, it’s heavy.
💜 The Mental Load You Can’t Always Name
SEN parenting comes with so many invisible layers: the meetings, the adjustments, the explaining, the fighting for things that shouldn’t need to be fought for. And beneath all of that is the love, the kind that keeps us pushing forward, even when we’re tired to the bone.
But that love also carries fear.
Fear that our child will be excluded.
Fear that they’ll be misunderstood.
Fear that the world won’t make space for them, and that we somehow have to hold that space alone.
💜 To the Parents in the Middle of the Tug
If you’re reading this and nodding, please know: I see you.
You’re not imagining how hard this is.
You’re not overthinking.
You’re not too sensitive.
You’re carrying a rope that weighs more than most people will ever know, and you’re doing it out of fierce, deep love.
☀️ A Gentle Reminder
You don’t have to hold it all perfectly.
You don’t have to be in control of every pull.
You are allowed to:
• Choose joy, even in small doses.
• Let go of guilt when the balance isn’t perfect.
• Trust your instincts, you know your child better than anyone.
• Ask for help.
• Make room for your own needs too.
You are doing more than enough. You are holding both ends of that rope with grace, even when it doesn’t feel like it.
🛋️ You’re Not Alone — I’m Here to Listen
If the emotional weight of parenting is starting to feel too much, whether it’s SEN-related or not — counselling can help you create space for you again.
Please feel free to visit my website: http://www.relightcounselling.co.uk and book a free telephone consultation with me.
If you have any issues with booking, just get in touch and I’ll be happy to arrange it for you.